Genetic testing: Safety and Privacy?


Ordering genetic testing is ultimately your call, but Federal Laws are in place to protect you.

  • The PPACA (Patient Protection and Affordable Care Act) prohibits use of genetic information by insurance companies (for example for determining rates) or employers.
  • GINA (Genetic Information Nondiscrimination Act of 2008) is an act by Congress to protect the genetic information of a healthy person. But, for those with diseases that have already manifested, genetic information may be used by insurance. For example, if someone develops breast cancer and has an associated gene, that information may be used to determine the best care. But, if someone just has the gene but no breast cancer, information about that gene is protected.
  • GenoVive destroys your sample unless you opt to allow them to save it for future research.
  • If any insurance company asks me for records of genetic testing I’ve ordered for you, I will disclose the least amount possible. To that end, I will not keep a copy of your results because that way I will have nothing to disclose!

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